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Voices for Neglected Diseases

Nancy Chemluo   Nancy Chemluo, A Mother’s Struggle to Cure a Child with Kala Azar
Visceral Leishmaniasis
West Pokot
Kenya

Thursday, 23 August 2012, a sunny and very hot afternoon in West Pokot, Kenya: Dust devils circle into the air as pickup trucks packed with passengers drop off numbers of people, who all settle under a large tree in the village. This is where the community gathers for elders’ meetings. It is here that Nancy Chemluo recounts how kala azar affected two of her sons, and how she and her community changed their approach to seeking treatment.
Tags: Leishmaniasis Advocacy

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  Angèle, subsistence farmer
Human African Trypanosomiasis
Musenge Village, Masi Manimba
Democratic Republic of the Congo

Angèle is in her early twenties. She is married and has three children. She and her husband work in the field as subsistance farmers to gather food for their family. In July this year, the sleeping sickness mobile unit paid an important visit to her village to screen the population for the disease. Angèle was diagnosed with late stage sleeping sickness.

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Lemarus Tebakwani Lukeno
 
  Lemarus Tebakwani Lukeno
Visceral Leishmaniasis
Kenya

It’s early on the morning of Thursday, 23 August 2012. We are at the Chemolingot Sub-district Hospital, where SSG&PM treatment is being administered to patients suffering from kala-azar (visceral leishmaniasis). In one of the wards, sitting on a hospital bed, is Lemarus Tebakwani Lukeno, a 23-year-old kala-azar patient, who has been undergoing treatment for five days.

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Lionel Messi
 
  Lionel Messi, football player
Chagas Disease
Barcelona, Spain
and Rosario, Argentina
The world's number one soccer player, Lionel Messi, who plays for FC Barcelona and the Argentina national team, having seen a documentary by Ricardo Preve on Al Jazeera, 'Chagas, A Silent Killer', speaks out about Chagas disease. The soccer star calls for teamwork in the field of Chagas disease to treat patients and find altogether new treatments.

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