Chagas Disease in the Americas: Improving Access and Tools for Patient Diagnosis and Treatment

[October 2, 2009]
Los Angeles, USA



9:00 – 9:15 AM: Welcome

Claire Panosian, MD, Co-Director, UCLA Program in Global Health
Matthew Spitzer, MD, President, Médecins Sans Frontières
9:15 – 9:30 AM: Opening Address
Video message from Amelia Nascimento, Chagas patient support group, Sao Paulo, Brazil
Introductory Presentations: Setting the Stage

9:30 – 9:40 AM: National Programs for Chagas Disease in Latin America

James Fitzgerald, PhD, Senior Advisor, Essential Medicines and Biologicals, Pan American Health Organization (PAHO)/ World Health Organization (WHO)
Susan P. Montgomery, DVM, MPH, Parasitic Diseases Branch, Centers for Disease Control and Prevention (CDC)
Morning Session I: Challenges of Diagnosing and Treating Chagas Disease


10:00 – 11:30 AM: Panel Chair – James H. Maguire, MD, Professor of Medicine, Harvard Medical School; Senior Physician, Division of Infectious Disease, Brigham and Women’s Hospital
11:30 – 11:45 AM: Coffee Break
Morning Session II: Patient Advocacy and Access to Care – Breaking Through the Barriers


11:45 AM – 1:00 PM: Roundtable on the multilevel barriers hindering patient access to care in Latin America and the US and proposed solutions: 5-min introductions and presentation of issues followed by group discussion – Moderator: Gemma Ortiz M Genovese, BSc(Hon), MSc, Neglected Diseases Senior Advocacy & Liaison Officer, Médecins Sans Frontières/Doctors Without Borders
  • Sergio Sosa-Estani, MD, MPH PhD, Head, Service of Epidemiology, National Center for Research on Endemic Diseases/ANLIS, Argentina
  • Victor Condé, MD, Physician, Bolivia Chagas treatment program, Médecins Sans Frontières/Doctors Without Borders
  • Eliana T. Loveluck, MSW, Director, Center for Consumers, The National Alliance for Hispanic Health
  • Janine Ramsey Willoquet, PhD, Director, Regional Center for Public Health Research, National Institute for Public Health, Mexico
  • Maira Gutierrez, Los Angeles-area patient
1:00 – 2:00 PM: Lunch
Afternoon Session I: Chagas Disease R&D and Innovation

2:00 – 3:30 PM: Panel Chair: Julio Urbina, PhD, Emeritus Investigator, Venezuelan Institute for Scientific Research (IVIC)

3:30 – 3:45 PM:     Coffee break
Afternoon Session II: Sustainable Funding and Innovative Financing Mechanisms

3:45 – 4:45 PM: Panel Chair: Jana Armstrong, Executive Director, Drugs for Neglected Diseases initiative (DNDi) North America

4:45 – 5:15 PM: Wrap-Up – Presentation and discussion of consensus statements and calls for action
Eric Stobbaerts, Policy & Advocacy Coordinator for Chagas Campaign, Drugs for Neglected Diseases initiative (DNDi); Oliver Yun, Medical Editor, Médecins Sans Frontières/Doctors Without Borders
5:15 – 5:30 PM: Closing Remarks
Bernard Pecoul, MD, Executive Director, Drugs for Neglected Diseases initiative (DNDi)